What does one ALS family think of the Ice Bucket Challenge?

A lot of people say their getting tired of seeing the ALS Ice Bucket Challenge on social media. 

So what how does someone living with ALS feel about it? Bo Stern, whose husband is suffering with ALS says go ahead and do it, raise the roof, raise a ruckus. She says they are in for the fight of their lives with this monster, and the very LAST thing she wants is for people to give quietly, anonymously, and then slink away. For those who cringe at the sight of another ice bucket dump, here are some challenges you could take to really feel ALS:

• Pick up a 10-pound weight. Now imagine it’s your fork and move it from your plate to your mouth repeatedly without shaking.

• Strap 25 pounds to your forearm. Now, adjust your rearview mirror.

• Using none of your own muscles, have your spouse or child or friend get you dressed and brush your teeth. Write down some of the feelings you have being cared for in this way.

Bo reminds us, fear not, the Ice Bucket Challenge shall soon pass and your Facebook newsfeed will go back to cat videos and kids singing Let It Go. Until that happens, remember that this level of awareness is like gold to families like hers.